Silent Angel*
*The term "silent angels" is often used to describe girls with Rett syndrome. Although they develop normally during the first months of life, they gradually lose the ability to speak and to use their hands. Yet they never stop expressing emotions — they do it through their gaze and smile, which speak louder than words.
Pola Betkier from Kluczbork is only two years old, yet she’s already fighting an unfair battle against an enemy no child should ever meet — Rett syndrome.
It’s a rare genetic disorder that gradually takes away her abilities, speech, and independence.The only way to stop the progression of the disease is a specialized drug available only in the USA, combined with intensive rehabilitation. Thanks to this, Pola has a chance to maintain her abilities until a gene therapy — the only treatment that can completely reverse the effects of the disease — becomes available.The better her current condition, the greater her chance of full recovery.
What is Rett syndrome?
Rett syndrome is a rare developmental disorder that mainly affects girls. A child initially develops normally but later begins to lose previously acquired skills such as speech and hand coordination. The condition is often accompanied by difficulties with movement, breathing, and communication. Despite this, people with Rett syndrome are capable of emotional connection and require constant support and care.


Recent Donations
6 lutego, 2026
2.755,50 zł
Darowizna od społeczności Gminy Pokój i Przedszkolaków z Publicznego Przedszkola w Pokoju - kiermasz ciast i Jasełka
● Pola's Story
August 13, 2025 — a date we will never forget. The day our lives fell apart… The day we lost the hope that it was “just a developmental delay” and that our little girl simply needed more time.
The doctors’ words were merciless: Your daughter has Rett syndrome. It’s hard to describe what we felt — grief, fear, anger, disbelief? Probably all at once. No parent is ever ready to hear such words. But one thing we knew for sure — we would do everything in our power to save our daughter.
In the first months of life, nothing seemed wrong. Pola developed like a healthy baby — learning new skills, babbling happily. We went to physiotherapy due to mild asymmetry and low muscle tone — the doctors reassured us that it was common and that more exercise would help. We worked with her regularly, and progress came — slowly, but it came.
She learned to sit up and crawl at ten months — a bit later than her peers, but still within normal limits. Unfortunately, instead of further progress, regression began… Pola suddenly went silent, stopped babbling, and started losing skills — even holding a spoon or her favorite toy became difficult.
Today, our daughter cannot walk, stand, speak, point, or express her needs. Each cry is a mystery — is she hungry, tired, or is the disease taking something else away?
We imagined life with a two-year-old so differently — first words, bike rides, running barefoot in the grass, endless “why?” questions. Instead, Pola’s childhood has become a daily struggle with a disease she cannot understand.
Each day brings the risk of losing another ability. Seizures — a common and dangerous symptom of Rett syndrome — may come in the future.
A huge chance for Pola is the world’s first syrup-form medication that can slow down the disease’s progression.
It won’t cure her completely, but it will give her precious time — time to stop further regression and prepare for the gene therapy already in advanced clinical trials in the United States. Each day without the medicine increases the risk of irreversible loss — that’s why time is so critical.
The cost of treatment, however, is enormous…
Over €465,000 per year...
An unimaginable amount for one family — but possible to achieve through the kindness of many hearts. This medicine gives Pola a real chance to reach gene therapy and regain her independence, childhood, and life that the disease tries to take away.
The cost of treatment, however, is enormous…
Ponad 2 miliony złotych rocznie...
Kwota niewyobrażalna dla jednej rodziny, ale możliwa do osiągnięcia dzięki setkom dobrych serc. To właśnie dzięki temu lekowi Pola ma szansę dotrwać do terapii genowej i odzyskać samodzielność, dzieciństwo i życie, które choroba próbuje jej odebrać.
Do tej pory udało się zebrać
772 073zł
Kwota zebrana dzięki siepomaga.pl
40 000zł
Kwota wpłacona na konto Fundacji Poli Betkier
Data aktualizacji: 13.10.2025 r.
● You can help too
Pola is our first and only child. Longed-for, dreamed-of, deeply loved.
Her birth was a dream come true — we wanted to show her the world, travel together, and enjoy everyday life. Now we have only one dream — that Pola gets a chance at health and a normal life.
We are asking for your help. Without your support, we cannot raise such an enormous sum. Every donation and every share brings us closer to our goal. It’s an unequal fight — but we believe that together we can stop the disease and give Pola the happy childhood she deserves.
● How to donate
03
Bank transfer
Account number
PL63 1140 2004 0000 3802 8606 8909
Recipient
Fundacja Pola Betkier Foundation
Title
Donation
● How to donate
03
Bank transfer
Account number
PL63 1140 2004 0000 3802 8606 8909
Recipient
Fundacja Pola Betkier Foundation
Title
Donation
● Donation history
We are deeply grateful to all our donors whose support brings us closer every day to giving Pola a chance for recovery.
Thank you from the bottom of our hearts! ❤️
6 lutego, 2026
2.755,50 zł
Darowizna od społeczności Gminy Pokój i Przedszkolaków z Publicznego Przedszkola w Pokoju - kiermasz ciast i Jasełka





















































